People living with NCDs offer unique and powerful insights into issues and challenges of tackling NCDs on a day-to day basis. Individuals living with NCDs, their care partners and relatives grasp the issues and challenges they face the best, which gives them first-hand knowledge that cannot be replaced by technical expertise. The meaningful involvement of people living with NCDs is a critical element of an effective NCD response. From policymaking to awareness raising, clinical trials, academic research, advocacy, organisational governance, and more, people living with NCDs can contribute to many different facets of the NCD response and act as role models breaking barriers to inclusion.
Goal:
To promote meaningful involvement of PLWNCDs in all aspects of NCD continuum of care
This project aims to contribute reducing the burden of NCDs via strategic advocacy for multi-sectoral engagement in the NCD response. The project promotes the advocacy agenda of PLWNCDs and contribution to the process of mitigating NCD burden in the country. These objectives are achieved through implementation of a number of activities that include outreach to various stakeholders whose work influence NCD prevention and control, improvement of policies and regulation to improve NCD control efforts, and development of appropriate documentation for NCD advocacy in the country. The project focuses on the following objectives:
Develop NCDAK advocacy strategy
Promote direct outreach between NCDAK and relevant stakeholders
Promote advocacy towards key decision makers
Develop advocacy materials and knowledge sharing mechanisms to support the advocacy strategy.
This project seeks to strengthen NCDAK’s advocacy via PLWNCDs-led community mobilisation to promote NCD prevention and control in Kenya. The project is aligned to and will strive to implement priority advocacy objectives identified in the NCDAK advocacy strategy using varied actions including involving PLWNCDs as NCD champions. The project also focuses on using non-traditional NCD stakeholders to raise community awareness of NCDs. Sharing of lived experience by PLWNCDs will be one of the mechanisms used to enhance awareness of NCDs among these stakeholders.
The project focuses on the following objectives:
Enhancing people living with NCD-led community awareness on NCDs in selected counties
Cultivating NCD champions to promote the Kenya Advocacy Agenda of People Living with NCDs.
Engaging non-traditional NCD stakeholders in raising awareness on NCDs.
The Our Views, Our Voices (OVOV) is a Peer-led training programme aiming to utilise a peer-led training approach to equip people living with NCDs with skills to become effective spokespersons, share their lived experiences and amplify the Advocacy Agenda of People Living with NCDs, and build a powerful narrative on NCDs. The public
narrative framework (story of self, us and now) is fundamental to the trainings and is included in the training agenda. The programme organises and conducts training workshops targeting PLWNCDs groups with the aim of ensuring that the training skills and knowledge acquired are cascaded to other members of their groups.
The trainings equip participants with advocacy skills and facilitate them to identify advocacy opportunities in which they can participate. As part of the output of the training, the participants develop individual action plans that are monitored to ensure that they are implemented.
The project focuses on the following objectives:
Effective advocacy by PLWNCDs in Kenya
NCDs included in the UHC package, Health Policy in Kenya and budgeted for by the Government of Kenya
Knowledge of effective advocacy cascaded to other PLWNCDs in different disease organizations.
NCDAK supported the meaningful involvement of PLWNCDs in Kenya by scaling up the Our Views, Our Voices initiative. Representatives of patient led organisations for people living with stroke, diabetes, sickle cell, cancer and dementia will be organised into a caucus and empowered with organizational development support to spearhead and coordinate meaningful involvement of PLWNCDs in the NCD response in Kenya. Among the key activities of the Caucus will be planning for a national dissemination of the Advocacy Agenda for PLWNCDs in Kenya under mentorship and support of NCD Alliance Kenya.
The project aimed to amplify the voices of PLWNCDs by facilitating their participation in key county and national platforms and the 2018 UN High Level Meeting. The project also focused on community mobilisation and project aims to focus on community mobilisation through providing small grants to enable PLWNCDs organisations initiate projects for meaningful involvement of PLWNCDs
The project focuses on the following objectives:
Disseminate the advocacy agenda of PLWNCDs in Kenya
Establish National Caucus of PLWNCDs led member organisations
Facilitate the representation of the national caucus at county and national platforms and the participation of one PLWNCD at UN HLM 2018
Support three PLWNCDs organisations initiate projects to enhance involvement of PLWNCDs at the community level
This project aimed to upscale the advocacy agenda of PLWNCDs in Kenya by establishing a National Caucus
